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Research Application/Framework

Observational Health Data Sciences and Informatics

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The Observational Health Data Sciences and Informatics (or OHDSI, pronounced "Odyssey") program is a multi-stakeholder, interdisciplinary collaborative to bring out the value of health data through large-scale analytics. All our solutions are open-source.

OHDSI has established an international network of researchers and observational health databases with a central coordinating center housed at Columbia University.

openHIE

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OpenHIE is a Global Mission-Driven Community of Practice
Dedicated to improve the health of the underserved through open and collaborative, development and support of country driven, large scale health information sharing architectures.
Enabling large scale health information interoperability
Offering freely available standards-based approaches and reference technologies
Supporting each other’s needs through peer technical assistance communities

Phoenix CTMS

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Phoenix CTMS is a modern web application combining capabilities of database software used in clinical research in one modular system.

  • PRS (Patient Recruitment System)
  • CTMS (Clinical Trial Management System)
  • CDMS (Clinical Data Management System)

This unmatched feature set is geared to support all operational and regulatory requirements of the clinical front end in academic research, at CROs (Contract Research Organisations) and hospitals conducting clinical studies of any phase.

i2b2

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i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. The i2b2 Center is developing a scalable informatics framework that will enable clinical researchers to use existing clinical data for discovery research and, when combined with IRB-approved genomic data, facilitate the design of targeted therapies for individual patients with diseases having genetic origins. This platform currently enjoys wide international adoption by the CTSA network, academic health centers, and industry.

ResearchStack

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ResearchStack is an SDK and UX framework for building research study apps on Android.

It is designed from the ground up to meet the requirements of most scientific research, including capturing participant consent, extensible input tasks, and the security and privacy needs necessary for IRB approval.

Is it similar to Apple's ResearchKit(TM)?

Yes, an overarching goal of ResearchStack is to help developers and researchers with existing apps on iOS more easily adapt those apps for Android.

MOLGENIS

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MOLGENIS is a modular web application for scientific data. MOLGENIS was born from molecular genetics research (and was called 'molecular genetics information system') but has grown, thanks too many sponsors and contributors, to be used in many scientifc areas such as biobanking, rare disease research, patient registries and even energy research. MOLGENIS provides researchers with user friendly and scalable software infrastructures to capture, exchange, and exploit the large amounts of data that is being produced by scientific organisations all around the world.

OBiBa

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OBiBa software consists of a suite of stand-alone applications that support various study's data management activities. These modular applications can be integrated to create a comprehensive information management and analysis system for individual studies.

As part of the Maelstrom Research program, OBiBa suite includes advanced software components enabling data harmonization and federation for study networks that aim to harmonize and share securely data among their members.

OpenSpecimen

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OpenSpecimen (formerly known as caTissue Plus) is a Free & Open Source biobank/biospecimen management software. At the heart of OpenSpecimen is that “biospecimens without high quality data is of no value”.

OpenSpecimen is used across the globe in some of the most respected biobanks of various sizes and diseases. OpenSpecimen streamlines management of biospecimens across collection, consent, QC, request and distribution. Finally, OpenSpecimen is highly configurable and customizable. E.g., adding a custom field or form can be done in minutes by a non-IT person.

SHIMMER

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Shimmer is free and open-source, so you can easily add your own integrations and audit existing ones. Not to mention, you can use it with any programming language.
Fast to deploy: Stop wasting time trying to get digital health data - quickly deploy Shimmer with a few commands both locally and in the cloud.

Nightscout

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Nightscout (CGM in the Cloud) is an open source, DIY project that allows real time access to a CGM data via personal website, smartwatch viewers, or apps and widgets available for smartphones.

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