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Opereffa

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Opereffa stands for openEHR REFerence Framework and Application. It is a project for creating an open source clinical application which will be driven by the Clinical Review Board of openEHR. The clinical application will be built on top of a Java based open source framework, which is using the existing open source Java reference implementation of openEHR.

This web site contains information about the project, source code and binaries, and finally a demonstration of the current state of Opereffa.

OBiBa

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OBiBa software consists of a suite of stand-alone applications that support various study's data management activities. These modular applications can be integrated to create a comprehensive information management and analysis system for individual studies.

As part of the Maelstrom Research program, OBiBa suite includes advanced software components enabling data harmonization and federation for study networks that aim to harmonize and share securely data among their members.

MOLGENIS

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MOLGENIS is a modular web application for scientific data. MOLGENIS was born from molecular genetics research (and was called 'molecular genetics information system') but has grown, thanks too many sponsors and contributors, to be used in many scientifc areas such as biobanking, rare disease research, patient registries and even energy research. MOLGENIS provides researchers with user friendly and scalable software infrastructures to capture, exchange, and exploit the large amounts of data that is being produced by scientific organisations all around the world.

ResearchStack

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ResearchStack is an SDK and UX framework for building research study apps on Android.

It is designed from the ground up to meet the requirements of most scientific research, including capturing participant consent, extensible input tasks, and the security and privacy needs necessary for IRB approval.

Is it similar to Apple's ResearchKit(TM)?

Yes, an overarching goal of ResearchStack is to help developers and researchers with existing apps on iOS more easily adapt those apps for Android.

OpenSpecimen

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OpenSpecimen (formerly known as caTissue Plus) is a Free & Open Source biobank/biospecimen management software. At the heart of OpenSpecimen is that “biospecimens without high quality data is of no value”.

OpenSpecimen is used across the globe in some of the most respected biobanks of various sizes and diseases. OpenSpecimen streamlines management of biospecimens across collection, consent, QC, request and distribution. Finally, OpenSpecimen is highly configurable and customizable. E.g., adding a custom field or form can be done in minutes by a non-IT person.

i2b2

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i2b2 (Informatics for Integrating Biology and the Bedside) is an NIH-funded National Center for Biomedical Computing based at Partners HealthCare System. The i2b2 Center is developing a scalable informatics framework that will enable clinical researchers to use existing clinical data for discovery research and, when combined with IRB-approved genomic data, facilitate the design of targeted therapies for individual patients with diseases having genetic origins. This platform currently enjoys wide international adoption by the CTSA network, academic health centers, and industry.